Although born in the southeastern corner of China and didn’t immigrated to the United States until age of 10, I consider myself a full-blooded American. Filled with too many aspirations, I am now 30 and still trying to figure out what to do in life.
I am a graduate from both University of Utah and Weber State University with a Bachelor of Science in Civil Engineering and Bachelor of Science in Accounting, respectively. I am also an aspiring writer and wannabe landscape photographer. My goal in life is to do what I love and be my own boss. One of my many dreams is to have my work one day be published and shared with the world which was fulfilled in 2018 when one of my stories got published.
I will try to be positive even when all around me is sad and gloomy. My optimism is sometimes annoying with the glass is half-full, something is better than nothing, etc.
Every person has a back story, a story they are dying to tell anyone who will listen. For me, it’s the mysterious battle I’ve been dealing with since I was just a toddler. Taken to see numerous doctors in the first 3 or 4 years of my life and unable to diagnose the condition that causes lumps in my arms and legs, my mom gave up until one night when I was 3. I had developed a high fever and in the middle of the night, my entire body went into a full seizure.
I didn’t even know I had spent 5 days in the hospital until my mom told the story to her friend a few years ago while we were walking to see the Old Faithful Geyser erupt at Yellowstone. My mom did learn a lot from that night, though. My body is Calcium deficient and it does not have the ability to absorb Calcium nor Vitamin D, in that matter.
After my dad passed away (still a mystery) and my mom immigrated to the U.S. in search of a new life some 15 years ago, I remained in China, enduring the difficult life of a Chinese elementary school student (lots and lots of homework and exams). During all that, I was transported back and forth between my aunt and grandparents, all who watched closely to make sure I don’t suffer another seizure episode while my mom was away.
Thankfully, I didn’t have another seizure until 2004, on the third anniversary of my arrival in the U.S. I contracted the flu, suffered from high fever the week before. Just as my fever broke, my body went into a seizure. Unlike the last time, this time, I was older and have complete memory of this night. It was my one and only near-death experience, one which probably no one will believe. It scared the hell out of me not to mention spending the night in the ER waiting room.
Then my doctor visit once again became frequent. After seeing an internal medicine doctor who then referred me to another internal medicine doctor at the USC Children Hospital, I was finally diagnosed with pseudohypoparathyroidism at 14 but the diagnosis was not confirmed and I wasn’t properly diagnosed with Albright’s Osteodystrophy until 18 when I visited a geneticist at the Primary Children Hospital in Salt Lake City.
After all these years, my mom have never managed to give up even though she lost hope for a while and so did I. She grew more and more optimistic as one after another doctor’s visit gone by that her daughter was one step closer to being diagnosed and properly treated.
Even though now that I’ve been properly diagnosed with this rare genetic disorder, the geneticist said I was the 10th patient with Albright’s Osteodystrophy in his 30 years of practice, I learned that there’s no cure for the disorder other than to turn back time and be diagnosed at a younger age. But I will remain optimistic and hopeful that one day, with the continuous advancement in technology, some sort of prevention or cure would be discovered.